Supporting families who have suffered the loss of a child or have a child living with medical complexities

Supporting families who have suffered the loss of a child or have a child living with medical complexities

Make a referral

If you would like to access our services or are a professional making a referral on someone’s behalf, we kindly ask that you complete the below referral form.

Please see details of our referral process below:

Step 1: Submit an initial referral using the form below.

Step 2:  We will arrange to call you to find out more about your circumstances and help answer any questions you may have.

Step 3: We will contact your General Practitioner to seek confirmation of meeting our criteria.

Step 4: If the criteria is met, we will then arrange for you to meet a family support worker either face to face or online to discuss how we might be able to support you and family. This forms the final stage of the assessment process.

Step 5: On occasion it may be necessary for us to present back our findings to the Board of Trustees for a final decision on
whether or not we are able to accept your family for our unique & bespoke support.

If the criteria for you to receive support from our charity is not met, you will be signposted to other services that may be more suitable for your needs.

Please be aware that use of language is very important to us; we have given much time and attention to adopting terminology which we feel best reflects our ethos and values. We understand that language is unique to each individual and recognise therefore that our terms may not feel like the right ‘fit’ for the family. Know that each individual/family receives a bespoke package of care which is tailor made to their needs and requirements.

We would always seek to adopt language which best reflects their own journeys wherever possible. We do not wish to cause any offence in the terminology we use and would ask individuals/families bring to our attention any particular terms which may be discomforting to them.

Who we support 

We support children living with medical complexities as well as their parents and siblings .

Our criteria for taking new referrals are that the child must be below the age of 18 and have been diagnosed with a life-threatening or shortening condition according to NICE Guidelines:

Group 1
Life threatening conditions for which curative treatment may be feasible but can fail (E.g. cancer, irreversible organ failures of heart, liver, kidneys).

Group 2
Conditions where premature death is inevitable (E.g. cystic fibrosis, Duchenne muscular dystrophy).

Group 3
Progressive conditions without curative treatment options (E.g. Batten disease, mucopolysaccharidoses).

Group 4
Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health (E.g. Severe cerebral palsy, multiple disabilities such as following brain or spinal cord injury).

Please note that Reuben’s Retreat is not a Children’s Hospice and as such we are not able to provide clinical care or respite breaks.

Contact Form - Complexly Poorly


Individual/Family in need of support