Supporting families of complexly poorly children and families of child loss

Supporting families of complexly poorly children and families of child loss

Make a referral

If you would like to access our services or are a professional making a referral on someone’s behalf, we kindly ask that you complete the below referral form.

Please see details of our referral process below:

Step 1: Submit a initial referral using the form below.

Step 2:  We will arrange to call you to find out more about your circumstances and help answer any questions you may have.

Step 3: We will contact your General Practitioner to seek confirmation of meeting our criteria.

Step 4: If the criteria is met, we will then arrange for you to meet a family support worker either face to face or online to discuss how we might be able to support you and family. This forms the final stage of the assessment process.

Step 5: On occasion it may be necessary for us to present back our findings to the Board of Trustees for a final decision on
whether or not we are able to accept your family for our unique bespoke & support.

If the criteria for you to receive support from our charity is not met, you will be signposted to other services that may be more suitable for your needs.

Our eligibility criteria

For families of complexly poorly children:   

We support parents, siblings and the complexly poorly child.

Our criteria for taking new referrals are that the child must be below the age of 18 and have been diagnosed with a life-threatening or shortening condition according to NICE Guidelines:

Group 1 
Life threatening conditions for which curative treatment may be feasible but can fail (E.g. cancer, irreversible organ failures of heart, liver, kidneys).

Group 2 
Conditions where premature death is inevitable (E.g. cystic fibrosis, Duchenne muscular dystrophy).

Group 3 
Progressive conditions without curative treatment options (E.g. Batten disease, mucopolysaccharidoses).

Group 4 
Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health (E.g. Severe cerebral palsy, multiple disabilities such as following brain or spinal cord injury).

Please note that Reuben’s Retreat is not a Children’s Hospice and as such we are not able to provide clinical care or respite breaks.

 

For families of child loss:

 

Our criteria for taking new referrals for bereaved families;

– We support parents and siblings of child loss.

– There is no restriction on the type of loss including stillbirth, SIDs, suicide, homicide, accidental death and illness.

We consider each case on an individual basis and will make an assessment.

For families of complexly poorly children:

– We support parents, siblings and the poorly child

Our criteria for taking new referrals are that the child must be aged between 0-25 years old and has been diagnosed with a life-limiting condition according to NICE Guidelines:

Group 1

Life threatening conditions for which curative treatment may be feasible but can fail. (E.g. cancer, irreversible organ failures of heart, liver, kidneys.)

Group 2

Conditions where premature death is inevitable. (E.g. cystic fibrosis)

Group 3

Progressive conditions without curative treatment options. (E.g. Batten disease, mucopolysaccaridoses, muscular dystrophy.)

Group 4

Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death (e.g. multiple disabilities such as brain or spinal cord injury.)

 

For families of child loss:

 

Our criteria for taking new referrals for bereaved families;

– We support parents and siblings of loss

– There is no restriction on time since the loss

– There is no restriction on the type of loss including miscarriage, stillbirth, SIDs, suicide, homicide, accidental death and illness

– There is no restriction on the age of the child that passed