Supporting families of complexly poorly children and families of child loss

Supporting families of complexly poorly children and families of child loss

Make a referral

If you would like to access our services, we kindly ask that you can complete a referral form.

Please see details of our referral process below:

Step 1: Submit a initial referral form below

Step 2:  We will arrange to call you to find out more and we help to answer any questions you may have

Step 3: We will contact your medical professional to confirm any further details.

Step 4: If the criteria are met, we will then arrange for you to meet a family support worker either face to face or online to discuss how we can help.

If the criteria for you to receive support from our charity are not met, you will be signposted to other services that may be more suitable for your needs.

Our eligibility criteria

For families of complexly poorly children:   

– We support parents, siblings and the poorly child

Our criteria for taking new referrals are that the child must be aged between 0-25 years old and has been diagnosed with a life-limiting condition according to NICE Guidelines:

Group 1 

Life threatening conditions for which curative treatment may be feasible but can fail. (E.g. cancer, irreversible organ failures of heart, liver, kidneys.)

Group 2 

Conditions where premature death is inevitable. (E.g. cystic fibrosis)

Group 3 

Progressive conditions without curative treatment options. (E.g. Batten disease, mucopolysaccaridoses, muscular dystrophy.)

Group 4 

Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death.

(e.g. multiple disabilities such as brain or spinal cord injury.)

 

For families of child loss:

 

Our criteria for taking new referrals for bereaved families;

– We support parents and siblings of loss

– There is no restriction on time since the loss

– There is no restriction on the type of loss including miscarriage, stillbirth, SIDs, suicide, homocide, accidental death and illness

– There is no restriction on the age of the child that passed

For families of complexly poorly children:

– We support parents, siblings and the poorly child

Our criteria for taking new referrals are that the child must be aged between 0-25 years old and has been diagnosed with a life-limiting condition according to NICE Guidelines:

Group 1

Life threatening conditions for which curative treatment may be feasible but can fail. (E.g. cancer, irreversible organ failures of heart, liver, kidneys.)

Group 2

Conditions where premature death is inevitable. (E.g. cystic fibrosis)

Group 3

Progressive conditions without curative treatment options. (E.g. Batten disease, mucopolysaccaridoses, muscular dystrophy.)

Group 4

Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death (e.g. multiple disabilities such as brain or spinal cord injury.)

 

For families of child loss:

 

Our criteria for taking new referrals for bereaved families;

– We support parents and siblings of loss

– There is no restriction on time since the loss

– There is no restriction on the type of loss including miscarriage, stillbirth, SIDs, suicide, homicide, accidental death and illness

– There is no restriction on the age of the child that passed